Two Bronx brothers raise awareness of rare blood condition
The brothers' hematologist says that since she’s started treating them 10 years ago, she’s watched them help others living with the same condition.
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A Soundview family is celebrating a big milestone after years of fighting a rare blood condition.
Brothers Brandon and Avery Rodriguez-Morgan have been in and out of the hospital for the past 10 years.
They have both been diagnosed with hemophilia, a rare blood condition.
Their mother, Jessie Rodriguez-Burgos, shows support for her sons through their diagnosis, and most recently, through their advocacy efforts.
"I find it important to advocate so we limit barriers for people to receive their medicine," said Brandon.
In March, the brothers represented the city’s hemophilia chapter in Albany.
"These boys are so open and honest with their disease really helps other children feel empowered to say, 'Hey, I have hemophilia, too.'" said Dr. Jennifer Davila, Brandon and Avery's hematologist at Children's Hospital at Montefiore.
They want to help push legislation that would protect patients with bleeding disorders.
“He worked hard to get to where he's going to make his dream possible," said their mother.
This Thursday, Brandon will represent his family in a new way, a valedictorian for his eighth-grade class.
“And, you know, I'll support him every step of the way,” said his mother.
Brandon plans to attend The Bronx High School of Science and pursue a career as a doctor, specializing in blood-related conditions.
